The stigma index collects information about the experiences of people living with HIV related to stigma, discrimination and human rights. It is for use by and with people living with HIV. The guide contains tools and an agenda for training people who will conduct the survey, and explains how to use the results for advocacy.
This user guide has been created for teams implementing the People Living with HIV Stigma Index in their communities.
This user guide contains background information on the index and its intended purpose; an introduction to the questionnaire and the data gathering process; and practical guidance for training interviewers, ensuring the interview process is conducted in an ethical manner, and for effective data entry and analysis.
The guide also includes tips for communicating the research findings and using them to advocate for the rights of people living with HIV.
The user guide and the accompanying questionnaire are for:
- managers or implementers of the People Living with HIV Stigma Index (for example, the team leader);
- people living with HIV who are going to conduct the interviews that form the basis of the index;
- those responsible for entering the data into the computer so that they are ready for analysis; and
- those responsible for analysing and reporting on the data.
The user guide can also serve as a useful background document for local networks of people living with HIV that have an important role in ensuring that the index is facilitated by and for people living with HIV within their communities.